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Rachel
Hi Aud. Congrats on another clean MRI! I am glad to see you are looking and feeling great. Hopefully I will get a chance to see you when I come home in December or January!
GiGi (Jenn)
Elkton Heights...21921
Hey,,, how come no blogging about our fun MRI dinner at Sitesy's last weekend??? That was one rockin meal and she even made Vegan crap for Mike! Not all the cool stuff happens in Salisbury;-(
GiGi (Jenn)
Elkton Heights...21921
Hey Sue...I've taught kids with Neurofibromitosis. It's a grueling and very frustrating disease. I help with fundraisers for the disease about once a year. I'm so sorry that so many members of your family had to endure this.
evita
londn
hi my little cuz thinks she has a brain tumor becuse she has beging getting headaches for 2 months and has beging acting funny
and she said that she see's stuff like a cup moving can u help
and she said that she see's stuff like a cup moving can u help
Audra writes:
Hi Evita. I suggest she go get and MRI to be sure.
sue
new york state
Hi Audra.My husbands sister had a genetic disease called neurofibromatosis(thats a big word huh?]It basically causes tumors to grow on the nerves including brain tumors.She passed it on to her two children.The tumors may be cancerous or not.Thiers were not cancerous but located on inoperable places in the brain.Radiation was tried but his sister died less than a year after diagnosis.Because his sister had this condition,my husband and all his other other brothers and sisters are now at a HUGE risk of developing tumors including gliomas hence my husbands oligodendroglioma diagnosis.So you can see that sometimes brain tumors do run in families even tho most doctors consider it be rare.Bye for now,Sue
sue
new york state
Hi Audra I am sorry about the audition I figure it is thier loss! The yoga class will just take a little time but I am sure it will work out in the end.I was thinking about things the other day and I realized that you do not know my whole history. Early in my life with my husband,his sister died of a brain tumor at the age of 38 and thru the years 2 of her 3 children also died of brain tumors so having watched 3 family members die of brain tumors gives me a very good idea of what my husband will go thu if things do not work out and that just freaks me out,which explains why I left my husband because it was almost too much to bear,but I needed to be stronger and so iWILL be because I have to be. Anyway best wishes as always, Sue
Audra writes:
Hi Sue. Wow. That really does put a different spin on things. What type of tumor did your sister-n-law and her children have? I'm sure you can understand my interest...
Jacob Hill
Brisbane
Hi, my names Jacob and I’m interested in starting my own website about my life. I heard it really easy and you can have pictures and videos and everything, I’ll really like to put my favorite child hood movies on there. If you could get back to me on how to start my own homepage please send me an email on jhill08@columba.qld.edu.au.
Cheers Jacob
Audra writes:
Hi Jacob. Go to karmasites.com and sign up for a website there.
lisa narnes
salisbury
Hi Audra,
So glad to hear you are doing well.(Hope u remember me--social worker @ cancer center).Teaching a class at SU and would love for you to talk to them.If interested email me lbarnes09@verizon.net
So glad to hear you are doing well.(Hope u remember me--social worker @ cancer center).Teaching a class at SU and would love for you to talk to them.If interested email me lbarnes09@verizon.net
sue
new york state
Hi, Audra,There was a story on Crazy sexy cancer on the public radio station I listen to.(WAMC in ALBANY)And they interviewed the woman who made it.It was interesting,and she was happy and upbeat about it but I must admit I have never heard of cancer being"sexy"Maybe I should try to watch it before I have an opinion on it ,anyway Hope you all had a nice Labor Day weekend! Sue
GiGi
Elkton Heights...21921
It just aired the other night for the first time so I'm assuming it'll be released on DVD soon. She calls it sexy because she's sexy and very crazy and it's all explained in the end how cancer is that too... it's a definite must-see. Funny and sad and cooky and very interesting.
GiGi
Elkton Heights...21921
Did anyone watch the documentary on the Learning Channel last night? It was called Crazy, Sexy, Cancer. It was by Kris Carr and it was outstanding. She's young and very dramatic and filmed the most real film of the disease. You all have to see it if you didn't see it last night.
Audra writes:
I didn't see it but it sounds interesting. Sexy??? I've never heard cancer called *that* before... lol... I wonder if Netflix has it.
Greta Valenti from "FUJI MINX"
Los Angeles, CA
Hey I stumbled upon your band site soehow and then found this one. I'm sad to hear your got a brain tumore but glad you are still alive and fighting the good fight! I LOVE that you took pictures of your surgery!! I bet these would help other cancer patients know what to expect and be able to cope with the experence a little better. Your family is so beautiful and I wish you the best! How's the hair coming in?
Peace Greta
Here's me for funsies: www.myspace.com/gretav OR my band
www.myspace.com/fujiminx
Rock on!
Peace Greta
Here's me for funsies: www.myspace.com/gretav OR my band
www.myspace.com/fujiminx
Rock on!
Audra writes:
Hi Greta! I LOVE your sound!!!! I bet you get compared to Gwen Stefani a lot. I did too. It drove me crazy. I think you're way cooler though. Keep it up 
sue
new york state
Hi,You should go to that audition sounds like much fun.My fingers will be crossed for you on the mri thing.I will wish you a happy birthday in advance in case I forget later which I do a lot.take care now,Sue
Audra writes:
Thanks Sue. I'm keeping your husband and you in my thoughts too. Don't give up!
mom
Good for you Sue I'm proud of you standing by your man!!Mom Things like this are not easy for anyone
sue
new york state
Hi Audra,I have returned home to my husband. I am ashamed of myself for losing it, but it has been almost 7 years of this hanging over our heads VERY STESSFUL to say the least, not to mention that he had an mri on august 16th and it has grown during the last 6 months much faster than it has ever done in the past.He is the love of my life, father of our two children,grandfather of our four grandchildren and I WILL stand by him,As he needs me now more than ever,I do not know WHAT I WAS THINKING!Thanks for listening Take care and best wishes, sue
Audra writes:
Hi Sue. I'm so glad to hear that!!! Even my husband was worried about you two and if you knew him you'd know how strange that was. Yes, he needs you now more than ever. I can only imagine...
Ericka
San Antonio
My children just took it in stride. They know I have to take medicine for my tumor but other than that everything else we do is the same stuff we used to do.
I too, worry about every little tic and headache. I have never had a seizure so would have no idea about what to expect.
But then, I'm not scared to fly now like I was before. I guess when you have faced to idea of your own mortality head-on, the idea of dying doesn't scare you so much.
By the way, I was born in Salisbury and grew up in Snow Hill until I was 5. We visit regularly now as my great aunt has a farm in Girdletree and my brother is a fireman in Ocean City.
I too, worry about every little tic and headache. I have never had a seizure so would have no idea about what to expect.
But then, I'm not scared to fly now like I was before. I guess when you have faced to idea of your own mortality head-on, the idea of dying doesn't scare you so much.
By the way, I was born in Salisbury and grew up in Snow Hill until I was 5. We visit regularly now as my great aunt has a farm in Girdletree and my brother is a fireman in Ocean City.
Audra writes:
My son needed a lot of extra hugs afterwards. That continued for at least three months after the surgery. He's fine now but still occasionally asks if random people have brain tumors. He's asked before if he has a brain tumor!
Ericka
San Antonio
Came across this blog while researching. I too have an oligo II. Diagnosed July 13, 2006 and had surgery on July 27, 2006. I am 30 years old, and have 3 children, ages 6, 4, and 3.
MRI as of July 3rd (also) looked clear and I am just trying to live a normal life
MRI as of July 3rd (also) looked clear and I am just trying to live a normal life
Audra writes:
Hi Ericka. If you care to share, please post your story in the converstaions and in the 'brain tumor' topic. I love to hear the experiences of others. How did your children react? "Normal" life is relative, isn't it? I've found I've more afraid of some things now (every little thing my body does that's unusual) and less afraid of others (taking chances, traveling, etc.) How about you?
Sue
new york state
Hi Audra, I have left my husband due to the stress of this crappy brain tumor stuff,I just can not take it anymore, you do not need to respond as I will not be here to see your message. good bye and good luck ! Sue
Audra writes:
Sue, I'm very sad for you both. I hope you can work through it.
sue
new york state
HI Audra, Just wanted to say hello, I am happy to see your life moving along normaly. On my side of life the doctors are now asking for my husband to have an mri every 6 months instead of yearly, so I am a BIT upset as I feel we are now sliding into the danger zone again. VERY stressful but we must deal with it I supose. Have a good one.pkpecx
Audra writes:
Hi Sue. I'm trying to cram as much in as possible!
C
Kathy: I have an oligo stage III diagnosed 8/05 and just finished 24 months of Temodar, which will be followed by many months (not sure how long) of Temoxifen in very high doses. So far so good for me. Good luck.
