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Terry/Story Similar to My Daughter's
Nashville
Audra: I was encouraged to read your story. My daughter, Stacy, is a 12 1/2 year oligodendroglioma survivor. She has had three surgeries, the last was 2 years ago at M. D. Anderson. Her tumor was located in the right frontal lobe and had the deletions that are good to have. She has had two rounds of radiation...right after her first surgery, and then after her last surgery. She also did a year of temodar after her second surgery. She is not married and does not have any children, although she would really love to have them. What part of the brain was your tumor located in? Stacy is vegan and I think that has helped her. Keep us posted about your upcoming new addition to your family! Love and prayers to you, Terry
Jayne
Elkton, MD
Hey Audra!
I hope you and the family are doing well. Sorry I haven't checked in for a while but Verizon has had my Internet down for 6 weeks....UGH!!!! I was diagnosed at Johns Hopkins and continue to go there for monitoring and seizure control. I just feel like I am waiting.....but I am not sure for what??? They say there is not much they can do for me right now other than attempt to control my seizures; which are partial complex, not grand mal thank god! I would love to sit and talk with you next time you are the area. If you would like I can give you my email address and we talk about this some more. Maybe you, your best friend and I could meet at Wesley's on 273 in Fairhill or somewhere like that...just as a suggestion
Lenore
Spokane
The neuro-oncologist is putting me on Temodar as soon as I can get my iron levels into a normal range. No talk of radiation, and he said I'd just stay on this Temodar until it stops working. Was your tumor 100% removed? Was it the type with the 1p and 19q deletion? I wish I could send my file to 10 neuro-oncologists to tell me what to do, but I guess that's not financially reasonable.
Thanks for the quick response, and best of luck to you and your family. I'm thrilled that you're having a new baby!
Lenore
Thanks for the quick response, and best of luck to you and your family. I'm thrilled that you're having a new baby!
Lenore
Lenore
Spokane
Hi Audra, I've enjoyed reading your blog this morning. I ran across it while searching oligodendroglioma. I was recently diagnosed, and had a tumor removed from my left frontal lobe. I think it actually was the whole left frontal lobe that I had. My incision looks like yours, though my doc wasn't a shaver.. just where he had to cut. 25% of the tumor remains in there, and I have a visit with a neuro-oncologist on Wednesday to see what we'll do about it. I'm just curious about your experience. Seems like there are lots of different opinions about chemo first, then radiation, or which chemo drugs get the best result. I'm 38 with twin 8 year olds, so I need a little more time on the planet.
Any advice to a newbie?
Any advice to a newbie?
Audra writes:
Hi Lenore. Advice? Well, take all advice with a grain of salt. Cancer treatment is more like an art than science. Each cancer type is different and then within brain cancer each tumor type is different. What it boils down to is it is all a big guess. Learn as much as you can and don't be afraid to question your doctors and use your own common sense. They are only human too. Before I became pregnant I was doing the CRON diet (calorie restriction with optimal nutrition). The theory is tumors needs calories and if your body has none "left over" to feed them they can't grow. That makes sense to me but like I said do what makes sense to you.
Tim Deters, other people's lives
Baraboo, Wisconsin
I was wondering what happened to Audra and the Antidote, and I found this place. Odd, how the (relatively) unremarkable details of other people's lives can be so vicariously fascinating. Forgive the familiarity, but while you look better with hair you look even better without that perverse brain kudzu which forced the unhappy dance that is a seizure. Enjoy the semi-new kitchen.
Sarah
Oxford, PA
Happy Happy Birthday!!
HAPPY BIRTHDAY!!!!!!!!
The Happiest of Birthdays Audra!! You deserve it!
Love you!! Phyllis
Love you!! Phyllis
Jayne
Elkton, MD
Hi Audra!
You are very strong! I usually do not respond to these, but you seemed very inspirational! Your positive attitude and stength sound a bit like me I thought it would be nice to talk to someone who is going through the same thing. I would first like to say that I grew up in OC and I read that is where you met your husband. Great place!
I was diagnosed 4 1/2 years ago with Oli grade 11 in my right temporal lobe and it is also infiltrated. Unlike what your doctor has told you, mine have stated that grade 11 is not cancer. I have questioned this numerous times based on the research I have done. At this point they have performed a biopsy and are choosing to simply monitor the tumor. I guess this is a good thing for now.
You keep up the good work and the positive attitude. You are an inspiration for those going through the same situation. Your family should be very proud of you!!!!!
You are very strong! I usually do not respond to these, but you seemed very inspirational! Your positive attitude and stength sound a bit like me
I thought it would be nice to talk to someone who is going through the same thing. I would first like to say that I grew up in OC and I read that is where you met your husband. Great place!
I was diagnosed 4 1/2 years ago with Oli grade 11 in my right temporal lobe and it is also infiltrated. Unlike what your doctor has told you, mine have stated that grade 11 is not cancer. I have questioned this numerous times based on the research I have done. At this point they have performed a biopsy and are choosing to simply monitor the tumor. I guess this is a good thing for now.
You keep up the good work and the positive attitude. You are an inspiration for those going through the same situation. Your family should be very proud of you!!!!!
Audra writes:
Jayne, it seems we have a lot in common! How did you find out about me? It's too big of a coincidence that my best friend lives in Elkton too and she and I grew up in Oxford. How odd that you are from Ocean City! Where did you have your diagnosis done? That's odd that they say type II isn't cancer. All my doctors say it is cancerous though it is relatively slow growing.
matt scharfglass/the border cops
nyc
hey audra - just read about your tumor on the r 'n r design site. just wanted to wish you the best. don't just beat this thing, but kick its ass until it runs away whimpering. take care...
Support
chino hills california
Hi Audra,
My name is Sylvia and I too was diagnosed with the same tumor as yourself. My surgery was June 4th of this year. I found your website very helpful. It is nice to talk with others who have been thru the same ordeal. Do you know of any other places to get support ? Hope we can email ? My email is McQuadeSylvia@yahoo.com. Thanks soo much.
My name is Sylvia and I too was diagnosed with the same tumor as yourself. My surgery was June 4th of this year. I found your website very helpful. It is nice to talk with others who have been thru the same ordeal. Do you know of any other places to get support ? Hope we can email ? My email is McQuadeSylvia@yahoo.com. Thanks soo much.
Audra writes:
Hi Sylvia. Thanks for posting. Good luck with your ordeal. Feel free to email me. I'm pretty busy but occasionally I take some time to reply. 
Corena Coldiron Spencer
Dawn,Missouri
Dear Audra,
Hello, hope this message finds you and your family in good health.I wrote you last about 4 yrs. ago after my Mom was killed in car accident.Take care of yourself I like keeping up with "The Coldiron's".Corena P.S. I'm a Grandma now,2 times over
Hello, hope this message finds you and your family in good health.I wrote you last about 4 yrs. ago after my Mom was killed in car accident.Take care of yourself I like keeping up with "The Coldiron's".Corena P.S. I'm a Grandma now,2 times over
Phyllis // It's A GIRL!!!
Nashville, TN
A beautiful, precious girl for my beautiful, precious girl!!! I can't wait to meet Irie.
Love you,
Your Other Mother
Phyllis
Love you,
Your Other Mother
Phyllis
Liz
Delmar, MD
Greetings, it's me Liz from the UU. I found your site via meet up, when looking around for a Homesteading meet up! Have you been to the new baby store in Salisbury? It's called Go Green Baby and they have cloth diapers and baby slings!
I hope to see you around at the UU!
Liz
I hope to see you around at the UU!
Liz
Lillý Valgerður Oddsd.
Reykjavík , Iceland
Dear Audra
My daughter wa born 28 jan 1974 she got oligodendroglioma 5 years ago. She has now babyboy born 2007. I know how difficult this is for you. I send you my best regards. I am going to read what you write.
Best regards Lillý lillyodds@gmail.com
My daughter wa born 28 jan 1974 she got oligodendroglioma 5 years ago. She has now babyboy born 2007. I know how difficult this is for you. I send you my best regards. I am going to read what you write.
Best regards Lillý lillyodds@gmail.com
HI Audra
Wow, very interesting.
CONGRATULATIONS (Gene-Manuel)
New York City!
Hey Audra, Mike and Quinn!
Congratulations on the new baby news! Fantastic!
All the best,
Gene-Manuel
PS- I just recommended you guys to a friend of mine. Hopefully they'll contact you about a website soon.
Congratulations on the new baby news! Fantastic!
All the best,
Gene-Manuel
PS- I just recommended you guys to a friend of mine. Hopefully they'll contact you about a website soon.
Darci Monet
L.A.
Hey Audra, I just stopped by to catch up on your health and stuff...so happy to hear that you are doing well and about your pregnancy! You are so brave. And Quinn just gets gorgeouser and gorgeouser! More blessings are on the way.
Jeanine
Murrells Inlet
Congrats Audra!!!!This child will have awesome parents and an incredible big brother. I hope the morning sickness will pass soon for you.
smiles
smiles
Maggie
Louisville
Hey Aud! Congratulations on your pregnancy!! I'll be teaching at Ouachita Baptist University in Arkansas this fall. Mark will be telecommuting to dailydna.com. We now have a blog: thegarrettfamily.us/blog. There's not much on it. We went to a Beatles festival. It was a fun way to speand a beautiful afternoon. Did you know the B-52's have a new CD? Take care!
Audra writes:
Hey Maggie! I was just thinking about you last night and how I needed to call or email you!!! I'll try to do that soon. I'm really going in slow motion here lately with the morning sickness, I tell 'ya
Good luck with the pregnancy!
Pocomoke MD
Best of luck this time. Hope Quinn has a new brother or sister for the New Year's.
Strider
Strider
